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:: Volume 10, Issue 4 (winter 2014) ::
Sci J Iran Blood Transfus Organ 2014, 10(4): 372-386 Back to browse issues page
The knowledge of hemophilia affected adolescents on the prevention of hemophilia complications
F.S. Hosseini , H. Jolayi , L. Valizadeh , A. Tabaghchy Ahary , M.V. Hashemi , Zh. Varmazyar
Keywords: Key words: Adolescent, Knowledge, Hemophilia, prevention, complications
Full-Text [PDF 371 kb]   (2925 Downloads)     |   Abstract (HTML)  (9297 Views)
Type of Study: Research | Subject: Hematology
Published: 2013/12/21
Full-Text:   (6424 Views)
References:
  1. Schulman S. Treatment of Hemophilia Monographs: Mild hemophilia. Canada: World Federation of Hemophilia; 2006. Available from: http://www1.wfh.org/publications/files/pdf-1192.pdf.
  2. World Federation of Hemophilia Report on the Annual Global Survey 2009. Canada: World Federation of Hemophilia; 2011. Available from: http://www1.wfh.org/publications/files/pdf-1428.pdf.
  3. Abshire T. The role of prophylaxis in the management of von Willebrand disease: today and tomorrow. Thromb Res 2009; 124 Suppl 1: S15-9.
  4. White GC 2nd, Rosendaal F, Aledort LM, Lusher JM, Rothschild C, Ingerslev J, et al. Definitions in hemophilia. Recommendation of the scientific subcommittee on factor VIII and factor IX of the scientific    and      standardization   committee   of   the
 
 
International Society on Thrombosis and Haemostasis. Thromb Haemost 2001; 85(3): 560.
  1. Kasper CK. Hereditary plasma clotting factor disorders and their management. Haemophilia 2000; 6 Suppl 1: 13-27.
  2. Manco-Johnson MJ, Abshire TC, Shapiro AD, Riske B, Hacker MR, Kilcoyne R, et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357(6): 535-44.
  3. Goedert JJ, Eyster ME, Lederman MM, Mandalaki T, De Moerloose P, White GC 2nd, et al. End-stage liver disease in persons with hemophilia and transfusion-associated infections. Blood 2002; 100(5): 1584-9.
  4. Mejia-Carvajal C, Czapek EE, Valentino LA. Life expectancy in hemophilia outcome. J Thromb Haemost
2006; 4(3): 507-9.
  1. Franchini M, Mannucci PM. Co-morbidities and quality of life in elderly persons with haemophilia. Br J Haematol 2010; 148(4): 522-33.
  2. Philipp C. The aging patient with hemophilia: complications, comorbidities, and management issues. Hematology Am Soc Hematol Educ Program 2010; 2010: 191-6.
  3. Khawaji M, Astermark J, Von Mackensen S, Akesson K, Berntorp E. Bone density and health-related quality of life in adult patients with severe haemophilia. Haemophilia 2011; 17(2): 304-11.
  4. Berntorp E. Joint outcomes in patients with haemophilia: the importance of adherence to preventive regimens. Haemophilia 2009; 15(6): 1219-27.
  5. Berntorp E, Shapiro A, Astermark J, Blanchette VS, Collins PW, Dimichele D, et al. Inhibitor treatment in haemophilias A and B: summary statement for the 2006 international consensus conference. Haemophilia 2006; 12 Suppl 6: 1-7.
  6. Chambost H. Assessing risk factors: prevention of inhibitors in haemophilia. Haemophilia 2010; 16 Suppl 2: 10-5.
  7. Knobe K, Berntorp E. Haemophilia  and  joint  disease: pathophysiology, evaluation, and management. Journal of Comorbidity 2011; 1:  51-9.
  8. Chandy M. Treatment options in the management of hemophilia in developing countries. Canada: The World Federation of Hemophilia; 2005. Available from: http:// www1. wfh. org/ publication/files/pdf-1184.pdf.
  9. Mehdizadeh M, Kardoost M, Zamani G, Baghaeepour MR, Sadeghian K, Pourhoseingholi MA. Occurrence of hemophilia in Iran. Haemophilia 2009; 15(1): 348-51.
  10. Nazzaro AM, Owens S, Hoots WK, Larson KL. Knowledge, attitudes, and behaviors of youths in the US hemophilia population: results of a national survey. Am J Public Health 2006; 96(9): 1618-22.
  11. Abdoly F. The assessment of hemophilia patients' knowledge on self caring [dissertation]. Tehran: Tarbiat Modares University; 1989. [Farsi]
  12. Zandy M. The assessment of self caring effect on quality of life in patients with liver cirrhosis in Tehran city hospitals [dissertation]. Tehran: Tarbiat Modares University; 2002. [Farsi]
  13. Asgarpoor H, Mohammadi A, Memarian R. The effect of self care program on quality of life in hemophilic adolescent. Bimonthly Medical Daneshvar Journal 2007; 14(69): 1-8. [Article in Farsi]
  14. The Swedish Haemophilia Society. Swedish guidelines for: the care and treatment of hemophiliacs. Stockholm: The haemophilia centres in Malmö, Gothenburg and Stockholm; 2003. Available from: http://www.skane.se/pages/610581/Haemophiliacs.pdf.
  15. Zandian Kh, Oskoey BB, Kianpor Ghahfarokhy F, Tabatabaie S. Assessment of prevalence and severity of artropathy in the hemophilic patients referring to Ahwaz Shafa hospital hemophilia center. Jundishapur Scientific Medical Journal 2008; 7(1): 39-45. [Article in Farsi]
  16. Manco-Johnson MJ. Joint evaluation instruments in hemophilia. In: Rodriguez-Merchan EC. The Haemophilic Joints. 1st ed. Oxford : Blackwell Publishing; 2003. p. 45-55.
  17. Rodriguez-Merchan EC. Articular bleeding (hemarthrosis) in hemophilia. An orthopedist’s point of view. 2nd ed. Canada: World Federation of Hemophilia; 2008. Available from: http:// www1. wfh.org/ publication/files/pdf-1155.pdf.
  18. Miller KL, Guelcher C, Taylor A. Haemophilia A: patients' knowledge level of treatment and sources of treatment-related information. Haemophilia 2009; 15(1): 73-7.
  19. Tabor E. The epidemiology of virus transmission by plasma derivatives: clinical studies verifying the lack of transmission of hepatitis B and C viruses and HIV type 1. Transfusion 1999; 39(11-12): 1160-8.
  20. Kalantari H, MirzaBaghi A, Akbari M, Kalantari M, Shahshahan Z. Hepatits C and B in Blood Transfusion Recipients Indentified at Isfahan Province. Journal of Isfahan Medical School 2011; 29(139): 615-20. [Article in Farsi]
  21. Makarem A, Talebi M, Mazhari F, Kiyanosh N. Evaluation of Oral and Dental Health Status of Khorasan Province Hemophilic Patients in 2004. Journal of Mashhad Dental School 2008; 32(2): 161-8. [Article in Farsi]
  22. Abrisham M, Tabrizizadeh M, Ghateh A. Knowledge of Oral Hygiene among Hemophilic Patients Referred to Iranian Hemophilia Society. J Dent Res Dent Clin Dent Prospects 2009; 3(2): 60-3.
  23. Pashapoor N, Gol Mohammad Loo S. The acceptance of selftreatment in hemophilic patients after receiving instructions. Journal of Research in Medical Sciences 1998; 5: 140-2.
  24. Scully C, Dios DP, Giangrande P. Oral care for people with hemophilia or a hereditary bleeding tendency. World Federation of Hemophilia. Second Edition; 2008. Available from: http://www1.wfh.org/publication/files/pdf-1164.pdf.
  25. Wallny T, Hess L, Seuser A, Zander D, Brackmann HH, Kraft CN. Pain status of patients with severe haemophilic arthropathy. Haemophilia 2001; 7(5): 453-8.
  26. Varni JW, Gilbert A, Dietrich SL. Behavioral medicine in pain and analgesia management for the hemophilic child with factor VIII inhibitor. Pain 1981; 11(1): 121-6.
  27. Elander J, Robinson G, Mitchell K, Morris J. An assessment of the relative influence of pain coping, negative thoughts about pain, and pain acceptance on health-related quality of life among people with hemophilia. Pain 2009; 145(1-2): 169-75.
  28. World Federation of Hemophilia. Guidelines for the management of hemophilia. Canada: World Federation of Hemophilia; 2005. Available from: http://illinoisaap.org/wp-content/uploads/guidelines-Hemophilia-WHF-2005.pdf.
  29. Tiktinsky R, Falk B, Heim M, Martinovitz U. The effect of resistance training on the frequency of bleeding   in   haemophilia   patients:   a    pilot    study.
Haemophilia 2002; 8(1): 22-7.
  1. Koch B, Luban NL, Galioto FM Jr, Rick ME, Goldstein D, Kelleher JF Jr. Changes in coagulation parameters  with   exercise   in   patients   with    classic
hemophilia. Am J Hematol 1984; 16(3): 227-33.
  1. Greene WB, Strickler EM. A modified isokinetic strengthening program for patients with severe hemophilia. Dev Med Child Neurol 1983; 25(2): 189-96.
  2. Ross C, Goldenberg NA, Hund D, Manco-Johnson MJ. Athletic participation in severe hemophilia: bleeding and joint outcomes in children on prophylaxis. Pediatrics 2009; 124(5): 1267-72.
 
 
 
 

 
 
 
Original Article
 
 
 
 
Sci J Iran Blood Transfus Organ 2014; 10(4): 372-386
 
 
 

The knowledge of hemophilia affected adolescents on
the prevention of hemophilia complications
 
Hosseini F.S.1, Jolayi H.2, Valizadeh L.3, Tabaghchy Ahary A.4, Hashemi M.V.4, Varmazyar Zh.3
 
 
 
1School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran
2Health Policy Research Center, Shiraz University of Medical Sciences, Shiraz, Iran
3School of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran
4Iranian Hemophilia Society, Tabriz, Iran
 
Abstract
Background and Objectives
Hemophilia is a hereditary bleeding disorder associated with multiple complications. Adolescents are a wide population of hemophilia patients. The appropriate management of chronic diseases requires an adequate knowledge about their complications.  The aim of the present study is to assess the knowledge of hemophilia affected adolescents on the prevention of its complications. 
 
Materials and Methods
In this descriptive study, the adolescents affected with hemophilia were selected from 11 hemophilia centers during 9-month period between 2011-2012 by the available sampling method. For data collection, a questionnaire developed by researchers as the self report method was used. Data were analyzed using SPSS (version 13).
 
Results
From 108 participating hemophilic adolescents, 35.3% were not aware of hemophilia complications, 43.7% of the preventive methods of hemophilia complications, and 47% of the causes of the complications. Out of the total number, 69.5% had not received any information about the prevention of complications. In the assessment of the adolescents' knowledge of hemophilia complications, 67.6% were not aware of viral infections, 56.1% of threatening bleeding, 60.6% of the complications of dentistry procedures, 68.2% of threatening drugs, and 22.4% of threatening exercises. As far as the other aspects of the prevention of complications are concerned, the adolescents were either unaware or modestly aware.
 
Conclusions 
There is a need to promote the preventive knowledge of complications among hemophilia adolescents. Faced with the scarcity of resources, it is the education that plays an important role in organizing hemophilia services in developing countries.
 
Key words: Adolescent, Knowledge, Hemophilia, prevention, complications
 
 
 
 
Received: 22 Oct 2012
Accepted:10 Apr 2013
 
 
 

Correspondence: Valizadeh L., PhD of  Nursing. Associate Professor of School of Nursing and Midwifery,      Tabriz University of Medical Sciences.
P.O.Box: 51745-347, Tabriz, Iran. Tel: (+98411) 4796969 ; Fax: (+98411) 4796969
E-mail: valizadehl@tbzmed.ac.ir
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Hosseini F, Jolayi H, Valizadeh L, Tabaghchy Ahary A, Hashemi M, Varmazyar Z. The knowledge of hemophilia affected adolescents on the prevention of hemophilia complications . Sci J Iran Blood Transfus Organ 2014; 10 (4) :372-386
URL: http://bloodjournal.ir/article-1-829-en.html


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Volume 10, Issue 4 (winter 2014) Back to browse issues page
فصلنامه پژوهشی خون Scientific Journal of Iran Blood Transfus Organ
The Scientific Journal of Iranian Blood Transfusion Organization - Copyright 2006 by IBTO
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